Back-up Plans for Special Needs kids

Yes, it has been okay for me to laugh about my injuries the other day in the bathtub but the incident has raised a lot of …. issues.  (Warning:  Bitterness ahead)

First, let me say how glad I am that both my temples, especially the right, whacked down firmly on the bathtub in a flat manner; as my in-house brain guy tells me, if I’d just angled it slightly then I would probably have rearranged the interior of my head somewhat.  Probably not for the better.

Second, all the other injuries are relatively minor and have subsided and become general aches and moans.

Third, I give thanks that the people that read my blog (for the most part) have no idea who my beloved’s boss is.  That is because I want to rip him a new one.  Yes.  That’s right.  Tried to be polite.  But this ex-friend and power-hungry moron seemed to think my husband was ringing in to cancel work so that he could look after our kids.  He suggested alternatives for the future, including perhaps the hire of a Filipino maid (he’s the second health professional to suggest that and like the first time, I find it morally reprehensible).  Or perhaps we could ring up some emergency childcare respite type people – he’d even offer to pay!  Ha.

This was not about the kids.

This was about whether I had concussion.  Whether my biplobia was sign, symptom, or just passing through.  This was screaming woman, scared kids, and a father due on a ferry that only I could drive him to.

So boo-hoo, boss.  I don’t like the idea of my man disappointing ‘clients’ (btw: preferred patients – its truer and less capitalistic).  I don’t like that people may have rearranged their day to accommodate my man and then he has to let them down.  But I also don’t like a boss who thinks he can ride roughshod over everyone in his chase for a dollar and put the emotional screws on my hard-working husband.  The things I want to say to this ex-friend would see me booted off the web for life, probably, so I’m keeping it restrained.  This man used to pride himself on the family-like closeness of his team – now he rarely knows their names before they turn around and leave.  C’mon karma.

Now that the venting has finished, there is something way more important.

What do parents of children like ours do when the main care-giver/educator is not able to function?  We have no relatives nearby.  We have friends who could help but they all seem to have families somewhat like ours, too, and it would be a big burden for them.  This is a small town.  We do not have respite workers for long-term cases let alone “I’ll just call in an emergency and hire you” type respite workers.  What arrangements can be made that can get all of us through the day without too many meltdowns and tantrums?

In our case, my husband stayed home.  Yes, he obviously let down people who were expecting him at work.  But seriously, what were the options?  If someone comes up with something viable, please let me know.  These scenarios getting scarier the older we get.


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